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Effective Data Storytelling for HIV Service Providers
Best practices and tools for telling persuasive stories with your data.Resource updated 05/15/2024
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Capacity Building for Innovative Program Replication
SPNS initiative focused on building and enhancing the capacity of RWHAP recipients and subrecipients to replicate evidence-informed models of care/interventions among RWHAP jurisdictions. Project period: 2019-2023.RWHAP Technical Assistance Provider updated on 03/04/2024
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HIV Clinical Pharmacist Services
The HIV Clinical Pharmacist Services intervention shortens the time between referral to and engagement in care by allowing newly referred clients to see pharmacists in addition to other clinical providers for their initial appointment. This intervention is supported by findings from a retrospective cohort study that took place from 2013 to 2017 at a RWHAP-funded clinic. In addition to significantly decreasing the time between referral and initial visit, clients who saw a pharmacist also experienced shortened time to antiretroviral therapy initiation and viral suppression compared to those who only saw non-pharmacist providers.Resource from the RWHAP Best Practices Compilation updated on 11/01/2023
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Data to Care for People Coinfected with HIV and Hepatitis C Virus
The Michigan Department of Health and Human Services was one of seven health departments funded by Leveraging a Data to Care Approach to Cure Hepatitis C Virus (HCV) Within the RWHAP Part F SPNS initiative implemented from 2020–2022. With the support of the Yale University School of Medicine, which served as the Technical Assistance Provider, MDHHS matched RWHAP and HIV and HCV surveillance data, calculated HCV viral clearance cascades for coinfected populations, and worked with three RWHAP clinics to generate clinic-based lists of coinfected clients and conduct outreach and linkage to HCV treatment.Resource from the RWHAP Best Practices Compilation updated on 05/20/2024
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LA Links (Louisiana Links)
LA Links is a combined data-to-care and client navigation approach that cross-references routinely collected HIV surveillance data with other secondary data sources to identify and locate people with HIV who are not in care, as well as those who are in care, but with high viral loads. Originally implemented in 2013 as part of the Care and Prevention in the United States Demonstration Project, LA Links improved linkage to care, reengagement in care, and viral suppression. Louisiana expanded the program statewide in 2016.Resource from the RWHAP Best Practices Compilation updated on 11/01/2023
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Addressing and Identifying Food Insecurity in a Southeastern Ryan White Clinic
Description of an intervention to address food insecurity in a RWHAP-eligible population in a Southeastern U.S. clinic, with plans to examine the association with viral suppression and retention in care.
Resource (Conference Presentation) updated 09/14/2023
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Applying technological innovation: Harnessing an electronic patient portal to achieve a patient-centered approach to recertification
Using a multidisciplinary approach to harness the electronic patient portal for completion of RWHAP six-month recertification documents, we were able to create a more patient-centered method that complies with program requirements. We will discuss the challenges, opportunities, and results of using such technology in program recertification.
Resource (Conference Presentation) updated 09/14/2023
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Collecting and Using Data to Inform and Improve Information Dissemination
The TargetHIV website is the central hub for RWHAP technical assistance (TA), with an audience of 40,000 unique users a year. Of these, approximately 25 percent access resources from data-related TA providers. This poster will describe how we collect and interpret website data to monitor and improve our dissemination approaches.
Resource (Conference Presentation) updated 09/14/2023
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Assessing programmatic impact of movement between geographically clustered Part A service areas in Florida
RWHAP Part A programs in Florida are housed within county governments, not the state department of health. This prevents direct data sharing, leading to outdated out-of-care (OOC) lists. Migration of residents between counties complicates the management of OOC lists, creating a need for streamlined data exchange and matching.
Resource (Conference Presentation) updated 09/14/2023
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A Call for Enhanced Data Collection
The syndemic of opioid use disorder, HCV and HIV and stigma causes burdens on individuals and the system. Integrating siloed systems of care is critical to addressing this crisis. Overlapping cascades of care are key to understanding the empirical relationships of these diseases and opportunities to identify, prevent and co-treat.
Resource (Conference Presentation) updated 09/14/2023
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Two States’ Journeys to integrate programs and utilize innovative approaches to improve data quality
Data Systems are often black holes, where agencies enter in data, but are not able to efficiently access useful and actionable data back out to take actions to improve services. Learn how panel participants are using innovation and participatory design to provide useful tools and data to the front lines.
Resource (Conference Presentation) updated 09/14/2023
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Linkage, Integration, Navigation, and Comprehensive Services (LINCS)
This data-to-care (D2C) initiative, implemented by the San Francisco Department of Public Health and its affiliated clinics from 2015–2017, used three sources of data to identify people not in care: HIV surveillance data, healthcare provider referrals, and electronic health record (EHR) data. LINCS navigators then used disease intervention searching tools and EHR data to locate clients and connect them to an HIV care provider. LINCS navigators followed up with clients for 90 days to support engagement in care. LINCS participants were more likely to be retained in care and virally suppressed after the intervention than before.Resource from the RWHAP Best Practices Compilation updated on 01/03/2024
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Data Tools and Best Practices for Continuity of Services
Description of methods to implement data tools and best practices for continued client enrollment in RWHAP Part B, including steps being taken to make data driven decisions to improve patients’ access, engagement and health outcomes across our care continuum.
Resource (Conference Presentation) updated 09/14/2023
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EMR Data Collection and Infrastructure Improvement
Positive Health Clinic successfully completed a quality improvement project related to our EMR, EPIC. The focus of this project was streamlining data collection, data utilization, and reporting processes in the EMR. The enhancements to our EMR yielded improvements in three areas: communication across disciplines, formalized treatment plans, and data reporting.
Resource (Conference Presentation) updated 09/14/2023
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Assessing Medication Access Barriers in Patients Living with HIV
Virginia quality improvement program that identifies access to medication barriers and provides emergency medication supplies to people with HIV if no timely access is secured.
Resource (Conference Presentation) updated 09/14/2023
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Strengthening the safety net: Testing a data-to-suppression (D2S) intervention in the Ryan White HIV/AIDS Program
We will describe the development, early implementation, and simultaneous stepped-wedge evaluation of a novel structural intervention to promote viral suppression and reduce health disparities. The “data-to-suppression (D2S)” intervention involves enhanced Health Department data sharing and capacity building with providers of RWPA mental health, harm reduction, supportive counseling, and housing services.
Resource (Conference Presentation) updated 09/14/2023
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Cancer Mortality in New Jersey, 2000-2018
Cancer-related mortality accounted for 10% of deaths among PWDH, in New Jersey from 2000-2018. The most common cancers were non-Hodgkins Lymphoma (ADC) and lung cancer (non-ADC),ranked as number 1 and 2, followed by of colo-rectal, liver cancer, and KS, in 2015 to 2018.
Resource (Conference Presentation) updated 09/14/2023
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Oral Health Data in CAREWare: Process optimization – the Baltimore EMA Experience
Oral health of RWHAP participants remains a critical area of unassessed unmet need. Normative data needs and SWOT analyses indicated need for process improvement strategies involving providers for better data quality. Voluntary oral health data reporting is a key barrier to understanding/tracking the oral health status of RWHAP participants.
Resource (Conference Presentation) updated 09/14/2023
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Not in Care – An Exploratory Analysis of Who and Why
Comparison of those retained in care and not retained in care, using 2019 CAREWare data, which identified concerning health outcomes for those not retained.
Resource (Conference Presentation) updated 09/14/2023