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Overview of implementation science activities for the Ryan White HIV/AIDS Program (RWHAP) and feedback on future directions.News Article updated on 04/14/2023
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DPD: Data Coordination
Improving data collection and reporting.Resource (Conference Presentation) updated 09/14/2023
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Completing the RWHAP Part A Program Terms Report (PTR)
Step-by-step instructions for recipients on accessing and completing the 2023 RWHAP Part A PTR.Resource updated 04/18/2024
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Louisiana Public Health Information Exchange
The Louisiana Public Health Information Exchange is a bidirectional exchange that connects hospital system electronic health records with state surveillance data. Providers use the exchange to identify and relink people with HIV who are out of care to clinical and supportive services. Since LaPHIE was implemented in 2009, thousands of people with HIV who were out of care have been identified, with a significant number being successfully linked to care.Resource from the RWHAP Best Practices Compilation updated on 05/20/2024
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Leveraging a Data to Care Approach to Cure Hepatitis C within the RWHAP
SPNS initiative aimed to link individuals co-infected with HIV and HCV to care by leveraging public health surveillance and clinical data systems. Project period: 2020-2022.RWHAP Technical Assistance Provider updated on 05/15/2024
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Link-Up Rx
Link-Up Rx is a pharmacy-data-based Data to Care program implemented by the Detroit Health Department in partnership with the Michigan Department of Health and Human Services and a specialty pharmacy. Using pharmacy data to identify clients in need of follow-up greatly reduced the amount of time for clients to appear on “not in care” lists compared to traditional D2C approaches. Protocols for a three-tiered outreach and reengagement approach were developed to connect clients back to antiretroviral therapy and HIV care following a missed pharmacy pick-up. Nearly half of identified clients were linked back to their pharmacy or other HIV medical services.Resource from the RWHAP Best Practices Compilation updated on 01/03/2024
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Coordinating, Communicating, and Collaborating - The 3 Cs for Cluster Detection & Response
How to create comprehensive Cluster Detection and Response (CDR) programs as part of Ending the HIV Epidemic activities.Resource updated 09/18/2023
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Effective Data Storytelling for HIV Service Providers
Best practices and tools for telling persuasive stories with your data.Resource updated 05/15/2024
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Capacity Building for Innovative Program Replication
SPNS initiative focused on building and enhancing the capacity of RWHAP recipients and subrecipients to replicate evidence-informed models of care/interventions among RWHAP jurisdictions. Project period: 2019-2023.RWHAP Technical Assistance Provider updated on 03/04/2024
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Data to Care for People Coinfected with HIV and Hepatitis C Virus
The Michigan Department of Health and Human Services was one of seven health departments funded by Leveraging a Data to Care Approach to Cure Hepatitis C Virus (HCV) Within the RWHAP Part F SPNS initiative implemented from 2020–2022. With the support of the Yale University School of Medicine, which served as the Technical Assistance Provider, MDHHS matched RWHAP and HIV and HCV surveillance data, calculated HCV viral clearance cascades for coinfected populations, and worked with three RWHAP clinics to generate clinic-based lists of coinfected clients and conduct outreach and linkage to HCV treatment.Resource from the RWHAP Best Practices Compilation updated on 05/20/2024
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LA Links (Louisiana Links)
LA Links is a combined data-to-care and client navigation approach that cross-references routinely collected HIV surveillance data with other secondary data sources to identify and locate people with HIV who are not in care, as well as those who are in care, but with high viral loads. Originally implemented in 2013 as part of the Care and Prevention in the United States Demonstration Project, LA Links improved linkage to care, reengagement in care, and viral suppression. Louisiana expanded the program statewide in 2016.Resource from the RWHAP Best Practices Compilation updated on 11/01/2023
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Collecting and Using Data to Inform and Improve Information Dissemination
The TargetHIV website is the central hub for RWHAP technical assistance (TA), with an audience of 40,000 unique users a year. Of these, approximately 25 percent access resources from data-related TA providers. This poster will describe how we collect and interpret website data to monitor and improve our dissemination approaches.
Resource (Conference Presentation) updated 09/14/2023
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Assessing programmatic impact of movement between geographically clustered Part A service areas in Florida
RWHAP Part A programs in Florida are housed within county governments, not the state department of health. This prevents direct data sharing, leading to outdated out-of-care (OOC) lists. Migration of residents between counties complicates the management of OOC lists, creating a need for streamlined data exchange and matching.
Resource (Conference Presentation) updated 09/14/2023
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Linkage, Integration, Navigation, and Comprehensive Services (LINCS)
This data-to-care (D2C) initiative, implemented by the San Francisco Department of Public Health and its affiliated clinics from 2015–2017, used three sources of data to identify people not in care: HIV surveillance data, healthcare provider referrals, and electronic health record (EHR) data. LINCS navigators then used disease intervention searching tools and EHR data to locate clients and connect them to an HIV care provider. LINCS navigators followed up with clients for 90 days to support engagement in care. LINCS participants were more likely to be retained in care and virally suppressed after the intervention than before.Resource from the RWHAP Best Practices Compilation updated on 01/03/2024
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Data Tools and Best Practices for Continuity of Services
Description of methods to implement data tools and best practices for continued client enrollment in RWHAP Part B, including steps being taken to make data driven decisions to improve patients’ access, engagement and health outcomes across our care continuum.
Resource (Conference Presentation) updated 09/14/2023
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Cancer Mortality in New Jersey, 2000-2018
Cancer-related mortality accounted for 10% of deaths among PWDH, in New Jersey from 2000-2018. The most common cancers were non-Hodgkins Lymphoma (ADC) and lung cancer (non-ADC),ranked as number 1 and 2, followed by of colo-rectal, liver cancer, and KS, in 2015 to 2018.
Resource (Conference Presentation) updated 09/14/2023
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Oral Health Data in CAREWare: Process optimization – the Baltimore EMA Experience
Oral health of RWHAP participants remains a critical area of unassessed unmet need. Normative data needs and SWOT analyses indicated need for process improvement strategies involving providers for better data quality. Voluntary oral health data reporting is a key barrier to understanding/tracking the oral health status of RWHAP participants.
Resource (Conference Presentation) updated 09/14/2023
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Not in Care – An Exploratory Analysis of Who and Why
Comparison of those retained in care and not retained in care, using 2019 CAREWare data, which identified concerning health outcomes for those not retained.
Resource (Conference Presentation) updated 09/14/2023
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Addressing Opiate Use through Practice Transformation: Implementing Dashboard Reports to Improve Panel-Based Care
The U.S. opioid epidemic has significant impact on rates of overdose deaths among people with HIV. The aim of the project was to leverage the PDSA methodology to enhance a population-based, health information technology, intervention to facilitate the identification and panel management of high-risk clients with opioid use disorder.
Resource (Conference Presentation) updated 09/14/2023
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Leveraging a Data to Care Approach to Cure HCV: Jurisdiction Perspectives
Review of the data to care project and lessons learned on HCV micro-elimination activities from the Arizona Department of Health Services.Resource updated 05/15/2024