Chapter 8: Continuing the Conversation: Additional Engagement in HIV Care Resources

The following lists additional resources related to the SPNS Program, marginalized and underserved people with HIV, and the theoretical foundations and practical application of the models of care discussed in this curriculum.

IHIP Materials

• Innovative Approaches to Engaging Hard-to-Reach Populations Living with HIV/AIDS into Care training manual and Webinars.
• Integration of Buprenorphine into HIV Primary Care Settings training manual, curriculum, and Webinars.

SPNS Resources

• Download fact sheets about the Special Projects of National Significance.
• Learn more about the following SPNS Initiatives that informed this curriculum.

American Indian/Alaska Native (AI/AN) Initiative

• AI/AN Initiative Highlights Challenge of Unique Service Settings. What's Going on @ SPNS. May 2005. 

Outreach, Care, and Prevention to Engage HIV Seropositive Young MSM of Color Initiative

• Breaking Barriers, Getting YMSM of Color into Care: Accomplishments of the SPNS Initiative. What's Going on @ SPNS. December 2011.
• Special edition of AIDS Patient Care and STDs featuring research about the Young Men of Color Who Have Sex with Men (YCMSM) Initiative. August 2011. 
• Costs and Factors Associated with Turnover among Peer and Outreach Workers within the Young Men of Color Who Have Sex with Men SPNS Initiative. March 2010.
• Magnus M, Jones K, Phillips G, et al. for the YMSM of Color Special Projects of National Significance Initiative Study Group. Characteristics associated with retention among African American and Hispanic/Latino adolescent HIV-positive men: results from the Outreach, Care, and Prevention to Engage HIV-Seropositive Young MSM of Color Special Project of National Significance Initiative. JAIDS. 2009;53(4):529–36.
• Username—Outreach Worker. What's Going on @ SPNS. August 2006. 
• Stigma and the SPNS YMSM of Color Initiative. What's Going on @ SPNS. February 2006. 
• Hightow L, Leone P, Macdonald P, et al. Men who have sex with men and women: a unique risk group for HIV transmission on North Carolina College campuses. Sexually Transmitted Diseases. 2006;33(10):585–593.

Targeted Peer Support Model Development for Caribbeans Living with HIV/AIDS Demonstration Project

• Cost Analysis of the Caribbean Peer Promoter Initiative: The Impact of Budget Allocation Strategies on Program Participation and Retention. March 2010. 

Demonstration and Evaluation Models that Advance HIV Service Innovation Along the United States–Mexico Border

• Special edition of the Journal of HIV/AIDS and Social Services featuring research about this initiative. October 8, 2008. 
• Growing Innovative Care: Strategies for HIV/AIDS Prevention and Care Along the United States-Mexico Border. February 2008. 
• Innovations Along the United States-Mexico Border: Models that Advance HIV Care. 2005. 

Targeted HIV Outreach and Intervention Model Development and Evaluation for Underserved HIV-Positive Populations Not in Care

• Special edition of AIDS Patient Care and STDs featuring research about this initiative. June 2007. 
• Myers J, Shade S, Rose C, et al. Interventions delivered in clinical settings are effective in reducing risk of HIV transmission among people with HIV: results from the Health Resources and Services Administration's (HRSA) Special Projects of National Significance Initiative. AIDS and Behavior. 2010;14(3):483–92.

Prevention with HIV-Infected Persons Seen in Primary Care Settings Initiative

• Special edition of AIDS Behavior featuring research about this initiative. September 2007;11(Suppl 5). 
• Peers Can Play a Vital Role in Prevention with Positives. What's Going on @ SPNS. January 2007. 
• Prevention with Positives Is Off to a Positive Start. What's Going on @ SPNS. January 2005. 

Enhancing Linkages to Primary Care and Services in Jail Settings

• Enhancing Linkages: Opening Doors for Jail Inmates. What's Going on @ SPNS. May 2008.
• Jail: Time for Testing—Institute a Jail-Based HIV Testing Program. A Handbook and Guide to Assist 2010.
• Opening Doors: Corrections Demonstration Project for People Living with HIV/AIDS. December 2007.
• Enhancing Linkages to HIV Primary Care in Jail Settings. 2006.
• Special edition of AIDS Care featuring research about the Enhancing Linkages to HIV Primary Care and Services in Jail Settings Initiative. Summer 2012.

Enhancing Access for Women of Color Initiative

• Lounsbury D, Palma A, and Vega V. Simulating the dynamics of engagement and retention to care: a modeling tool for SPNS site intervention planning and evaluation. Presented by HRSA Special Projects of National Significance Multi-Site Evaluation Center, Albert Einstein College of Medicine on May 4, 2012, during SPNS Women of Color Initiative Grantee Meeting. May 4–5, 2012.
• Common Voices: SPNS Women of Color Initiative. What's Going on @ SPNS. April 2011.

Other SPNS Resources

• Improving linkages and access to care. What's Going on @ SPNS. January 2012.
• The Costs and Effects of Outreach Strategies That Engage and Retain People with HIV/AIDS in Primary Care. March 2010.

Other HRSA, HAB Resources

• HRSA HIV/AIDS Bureau factsheets about the populations served by the Ryan White HIV/AIDS Program
• Test and Treat. HRSA CAREAction. January 2012.
• Social Media and HIV. HRSA CAREAction. June 2011. 
• CONNECTIONS That Count. HRSA CAREAction. February 2010. 
• Rules of Engagement in HIV/AIDS Care. HRSA CAREAction. September 2007. 
• Outreach: Engaging People in Care. 2005.
• HIV/AIDS in Rural Areas: Lessons for Successful Service Delivery. 2002. 

Other Engagement Resources

• CDC. Diffusion of Evidence-Based Interventions (DEBIs). 
• Academy for Educational Development Center on AIDS and Community Health (COACH) and CDC. Antiretroviral Treatment and Access to Services (ARTAS) Implementation Manual
• Making the Connection: Promoting Engagement and Retention Into HIV Medical Care Among Hard to Reach Populations. 
• 25 Activities for Special Populations. Connecting to Care: Addressing the Unmet Need in HIV Rural and Formerly/Currently Incarcerated. 
• CDC. Using Viral Load to Monitor HIV Burden and Treatment Outcomes in the United States. 
• ONAP. National HIV/AIDS Strategy. Factsheet. July 2011. 
• ONAP. National HIV/AIDS Strategy for the United States. July 2010. 
• Miller W and Rollnick S. Motivational Interviewing. 2012. 
• Naar-King S and Suarez M. Motivational Interviewing with Adolescents and Young Adults. 2011. 
• Rollnick S, Miller W, and Butler C. 2011. Motivational Interviewing in Health Care: Helping Patients Change Behavior. 
• AIDS.gov's Guide to Using New Media Tools in Response to HIV/AIDS. 2010. 
• Connecting to Care: Addressing Unmet Need in HIV. 2010.
• Rosengren D. Building Motivational Interviewing Skills: A Practitioner Workbook. 2009.
• National Quality Center. Strategies for Implementing Your HIV Quality Improvement Activities. 2009. 
• New York Academy of Medicine. Breaking Barriers: A Toolkit for Getting and Keeping People in HIV Care. January 2007.

Other Journal Articles

• Thompson M, Mugavero M, Amico K, et al. Guidelines for improving entry into and retention in care and antiretroviral adherence for persons with HIV: Evidence-based recommendations from an International Association of Physicians in AIDS Care Panel. Ann Intern Med. June 5, 2012;156(11):817–833.
• Dutcher M, Phicil S, Goldenkranz S, et al. "Positive Examples": A bottom-up approach to identifying best practices in HIV care and treatment based on the experiences of peer educators. AIDS Patient Care and STDs. 2011;25(7): 403–411.
• Outlaw A, Naar-King S, Green-Jones M, et al. Brief report: predictors of optimal HIV appointment adherence in minority youth: a prospective study. J Pediatr Psychol. 2010 Oct;35(9):1011–5. Epub 2010 Feb 8.
• Rajabiun S, Rumptz M, Felizzola J, et al. The impact of acculturation on Latinos' perceived barriers to HIV primary care. Ethnicity and Disease. 2008;18(4):403–408.
• Drainoni M, Rajabiun S, Rumptz M, et al. Health literacy of HIV-infected individuals enrolled in an outreach intervention: results of a cross-site analysis. Journal of Health Communication. 2008;13(3):287–302.
• Iverson E, Balasuriya D, García G, et al. The Challenges of Assessing Fidelity to Physician-Driven HIV Prevention Interventions: Lessons Learned Implementing Partnership for Health in a Los Angeles HIV Clinic. AIDS and Behavior. 2008;12(6):978–988.
• Grodensky C, Golin C, Boland M, et al. Translating concern into action: HIV care providers' views on counseling patients about HIV prevention in the clinical setting. AIDS and Behavior. 2008;12(3):404–411.
• Thomas L, Clarke T, and Kroliczak A. Implementation of peer support demonstration project for HIV+ Caribbean Immigrants: a descriptive paper. Journal of Immigrant and Refugee Studies. 2008:6(4):526–544.
• Rodriguez AE, Metsch LR, Saint-Jean G, et al. Differences in HIV-related hospitalization trends between Haitian-Born Blacks and US-Born Blacks. JAIDS. 2007;45(5):529–534.
• Sacajiu G, Fox A, Ramos M, et al. The evolution of HIV illness representation among marginally housed persons. AIDS Care. 2007:19(4):539–545.
• Coleman S, Boehmer U, Kanaya F, et al. Retention challenges for a community-based HIV primary care clinic and implications for intervention. AIDS Patient Care and STDs. 2007;21(9):691–701.
• Kinsler J, Wong M, Sayles J, et al. The effect of perceived stigma from a health care provider on access to care among a low-income HIV-positive population. AIDS Patient Care and STDs. 2007;21(8):584–592.
• Tobias C, Cunningham W, Cabral H, et al. Living with HIV but without medical care: barriers to engagement. AIDS Patient Care and STDs. 2007;21(6):426–434.
• Andersen M, Hockman E, Smereck G, et al. Retaining women in HIV medical care. Journal of the Association of Nurses in AIDS Care. 2007;18(3):33–41.
• Naar-King S, Green M, Wright K, et al. Ancillary services and retention of youth in HIV care. AIDS Care. 2007;19(2):248–251.
• Cunningham W, Sohler N, Tobias C, et al. Health services utilization for people with HIV infection–comparison of a population targeted for outreach with the United States population in care. Medical Care. 2006;44(11):1038–1047.
• Steward W, Koester K, Myers J, et al. Provider fatalism reduces the likelihood of HIV-prevention counseling in primary care settings. AIDS and Behavior. 2006;11(1):3–12.
• Fields S, Wharton M, Marrero A, et al. Internet chat rooms: connecting with a new generation of young men of color at risk for HIV who have sex with other men. Journal of the Association of Nurses in AIDS Care. 2006;17(6):53–60.
• Cunningham C, Sohler NL, McCoy K, et al. Health care access and utilization patterns in unstably housed HIV-infected individuals in New York City. AIDS Patient Care and STDs. 2005;19(10):690–695.
• Mallinson R, Relf M, Dekker D, et al. Maintaining normalcy: a grounded theory of engaging in HIV-oriented primary medical care. Advances in Nursing Science. 2005;28(3):265–277.
• Needle R, Burrows D, Friedman S, et al. Effectiveness of community-based outreach in preventing HIV/AIDS among injection drug users. International Journal of Drug Policy. 2005;16(1):45–47.
• Myers J, Steward W, Charlebois E, et al. Written clinic procedures enhance delivery of HIV “prevention with positives” counseling in primary health care settings. JAIDS. 2004;37(Suppl 2):S95–S100.
• Morin S, Koester K, Steward W, et al. Missed opportunities: prevention with HIV-infected patients in clinical care settings. Journal of Acquired Immune Deficiency Syndromes.2004;36(4):960–966.
• Marseille E, Shade S, Myers J, et al. The cost-effectiveness of HIV prevention interventions for HIV-infected patients seen in clinical settings. Journal of Acquired Immune Deficiency Syndromes. March 2001;56(3):e87–e94.