Organizations that CARE: A Toolkit for Employing Consumers in Ryan White CARE Act Programs
Materials to help programs develop strategies to employ Ryan White consumers/people with HIV.
Resource updated 12/07/2023
Materials to help programs develop strategies to employ Ryan White consumers/people with HIV.
Resource updated 12/07/2023
Strategies to improve recruitment and retention of new PC/PB members.
Resource updated 01/05/2024
Resources for users of Electronic Health Record systems commonly used to complete the RSR.
Resource updated 09/19/2023
Workbook on setting up and operating a consumer advisory board (CAB).
Resource updated 12/07/2023
Review of the Training of Consumers for Quality Plus Program (TCQPlus), which prepares a team of training partners (staff and consumers to conduct quality improvement trainings.
Resource updated 03/14/2023
Resource updated 09/14/2023
Sample agreement submitted via the CAREWare listserv.
Resource updated 09/19/2023
Sample user agreement submitted via the CAREWare listserv.
Resource updated 09/19/2023
The RUSH intervention facilitates linkage to and retention in care through an opt-out HIV te
Resource updated 09/14/2023
Explore strategies to overcome common barriers to youth and young adult participation in Planning Councils and Planning Bodies, including innovative means to recruit and build interest in activities among youth and young adults, building their skills, and building meaningful cross-generational connections among members of Planning Councils and Planning Bodies.
Resource (Conference Presentation) updated 09/14/2023
La sesión 1 del Instituto de Liderazgo se centrará en el liderazgo de las personas con VIH y cubrirá el rol de la participación significativa de las personas con VIH a través de la historia del programa Ryan White. Explorará el liderazgo culturalmente sensible, el liderazgo transformacional y la humildad cultural. Los facilitadores demostrarán las habilidades de liderazgo formales e informales. Las personas con VIH están invitadas a participar.
Resource (Conference Presentation) updated 09/14/2023
Data systems are often black holes, where agencies enter data but are not able to efficiently access useful and actionable data back to take actions to improve services. Learn how the Connecticut Department of Health is using disruptive innovation and participatory design to provide useful tools and data to the front lines.
Resource (Conference Presentation) updated 09/14/2023
Through creative innovation, multiple approaches have been employed to assist patients with medication adherence. This presentation will look at the introduction of a clinical pharmacist in an urban, Ryan White-funded clinic, the impact on medication adherence, and the viral suppression and demographic trends observed over four years.
Resource (Conference Presentation) updated 09/14/2023
Given rising HIV diagnoses within the Latinx community, this presentation provides a holistic primer on patient-centered care for Latinx folks, de-emphasizing the ‘one size fits all' approach by considering the diversity and cultural nuances within the community. This presentation is for those newly interacting with the Latinx community or those seeking to strengthen existing relationships.
Resource (Conference Presentation) updated 09/14/2023
Leadership Institute Session 1 focuses on the leadership of people with HIV and will cover the role and history of meaningful involvement of people with HIV. It will explore culturally responsive leadership, transformational leadership, and cultural humility. Facilitators will demonstrate formal and informal leadership skills. People with HIV are encouraged to attend.
Resource (Conference Presentation) updated 09/14/2023
Session 2 of the Leadership Institute focuses on stigma and intersectionality. Participants will explore different forms and manifestations of stigma, the impact of stigma on health outcomes, and the tenets of intersectionality. There will be discussion on improving factors contributing to stigma and intersectionality that impact the HIV service delivery system. People with HIV are encouraged to attend.
Resource (Conference Presentation) updated 09/14/2023
Blog updated 06/10/2021
A culturally sensitive, participant-driven, Spanish-language group for Latina women with HIV promoted engagement in HIV services. Many participants had never previously engaged in support services. The increased participation resulted in multiple positive outcomes, including HIV viral load suppression, reduced stigma and isolation, engagement in mental health services, and increased community advocacy.
Resource (Conference Presentation) updated 09/14/2023
With integrative, patient-centered care, the organization’s interdisciplinary team approach to caring for patients with HIV has achieved a retention rate of 95% and the viral load suppression of patients with HIV to 95%.
Resource (Conference Presentation) updated 09/14/2023
New HIV infections continue to rise among members of the Latinx community, especially youth. To reverse this increasing trend, it is important to recognize the social, economic, linguistic, and cultural barriers that hinder the prevention and treatment efforts for HIV when developing an outreach strategy.
Resource (Conference Presentation) updated 09/14/2023