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Access these National Academy of Medicine and RWHAP consumer engagement tools.News Article updated on 06/23/2023
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Bottom-Up Project
The Bottom-Up Project is a multi-organizational initiative focused on leveraging health information exchange data and peer navigation. Using real-time clinical data, in combination with linkage to HIV care and social services, the Bottom-Up Project locates and reengages people with HIV who are not currently in medical care and are not virally suppressed. Through this collaboration, over half of patients on the lost-to-follow-up list were found and invited to enroll in the linkage to care/reengagement program.Resource from the RWHAP Best Practices Compilation updated on 01/03/2024
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DISQ Office Hours: Gender-Affirming Data Collection
DISQ “Office Hours” are technical assistance opportunities that allow Ryan White HIV/AIDS Program (RWHAP) recipient and provider staff to talk with their peers in an informal setting about specific technical challenges and solutions. These hour-long calls include a short presentation by a RWHAP recipient or provider about their data management approach.
Resource updated 07/13/2023
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Strategies for ADR Data Integration
This webinar will provide an overview of how to map data from multiple data sources in preparation for creating an compliant XML file.Resource updated 01/03/2024
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RSR Clients by ZIP Code Template
This .CSV ZIP Code Report file template can be used to report your clients’ ZIP code information.Resource updated 01/31/2024
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ADR Data Completeness Rates, 2013-2022
Charts showing completeness of data reported by ADAP grantees from 2013 to 2020.Resource updated 04/18/2024
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ADAP Data Report (ADR) Crosswalk
Table for ADAPs on ADR variables and values in relation to their data systems.Resource updated 10/23/2023
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ADR TRAX
The basics of creating an XML file for the ADR with TRAX.
Resource updated 05/03/2023
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NC-LINK Intervention Manual: Instructions for Replication
Insights on replicating the strategy and lessons learned from the four interventions in NC‐LINK, a demonstration site under the HRSA SPNS Systems Linkages and Access to Care Initiative.
Resource updated 09/16/2021
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Replication Resources: SPNS Systems Linkages and Access to Care
Insights from a multi-state demonstration and evaluation of innovative models for linkages to and retention in HIV care.
Resource updated 09/20/2021
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RSR In Focus: Creating the RSR and ADR eUCI
Guidelines for creating and encrypting the Unique Client Identifier (eUCI). Encryption of the eUCI must be included in the Ryan White Services Report (RSR) and ADAP Data Report (ADR) client-level data XML files.
Resource updated 09/14/2023
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RSR In Focus
Tools to walk users through some common functions associated with preparing and submitting the RSR.
Resource updated 09/19/2023
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Virginia Systems Linkages and Access to Care Protocols
Virginia, one of the demonstration states of the HRSA SPNS Systems Linkages and Access to Care Initiative, developed manuals to support linkages to HIV care.
Resource updated 09/16/2021
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Wisconsin Systems Linkages and Access to Care Manuals
Insights from the Wisconsin demonstration site of the HRSA SPNS Systems Linkages and Access to Care Initiative to increase the number of people with HIV engaged in care by creating a “system of linkages” along the HIV continuum of care.
Resource updated 09/14/2023
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Massachusetts SPECTRuM: Engagement and Retention Via Peer and Surveillance Data
Insights on replicating strategies and lessons learned in the Massachusetts demonstration site of the HRSA SPNS Systems Linkages and Access to Care Initiative.
Resource updated 09/16/2021
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ADR In Focus Series
Strategies to make ADR data more accurate and useful.
Resource updated 09/14/2023
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Improving Health Outcomes: Moving Patients Along the HIV Care Continuum and Beyond
Insights on ways that HIV care programs have improved health outcomes along the HIV care continuum.
Resource updated 03/13/2024
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Innovative Approaches to Engaging Hard-to-Reach Populations Living with HIV/AIDS into Care
Tools to help health care providers adapt SPNS models within their existing operations in order to better engage hard-to-reach people with HIV into care.
Resource updated 05/15/2024
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Enhancing Linkages to Care for Women Leaving Jail: Case Study, Overview, and Replication Tips
Evidence-informed intervention that integrates jail-based case managers to work with jail-based discharge planners and peers to support HIV-positive women as they transition from jail to the community.Resource updated 08/29/2022
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My Health Profile Continuity of Care Record Intervention: Case Study, Overview, and Replication Tips
Patient portal, leveraged across a regional health network, with critical health information to improve continuity of care.Resource updated 08/31/2022