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Access these National Academy of Medicine and RWHAP consumer engagement tools.News Article updated on 06/23/2023
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Bottom-Up Project
The Bottom-Up Project is a multi-organizational initiative focused on leveraging health information exchange data and peer navigation. Using real-time clinical data, in combination with linkage to HIV care and social services, the Bottom-Up Project locates and reengages people with HIV who are not currently in medical care and are not virally suppressed. Through this collaboration, over half of patients on the lost-to-follow-up list were found and invited to enroll in the linkage to care/reengagement program.Resource from the RWHAP Best Practices Compilation updated on 01/03/2024
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DISQ Office Hours: Gender-Affirming Data Collection
DISQ “Office Hours” are technical assistance opportunities that allow Ryan White HIV/AIDS Program (RWHAP) recipient and provider staff to talk with their peers in an informal setting about specific technical challenges and solutions. These hour-long calls include a short presentation by a RWHAP recipient or provider about their data management approach.
Resource updated 07/13/2023
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Ryan White and World AIDS Day 2022
Learn about World AIDS Day and activities of HRSA's Ryan White HIV/AIDS Program.
Blog updated 11/09/2023
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RSR Data Completeness Rates, 2011-2022
These charts show improvements in completeness of data reported by Ryan White grantees from 2011 to 2022, measured by known rates for client demographics and clinical information.
Resource updated 09/14/2023
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The Use of Peer Workers in Special Projects of National Significance Initiatives, 1993 – 2009
Compilation of SPNS grantee experiences with peer models and how they can be used in various care settings.
Resource updated 01/31/2023
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RSR in Focus: Using Your Electronic Health Record (EHR) to Capture and Report RSR Data
Tips for making the most out of your EHR data for RSR reporting.
Resource updated 09/14/2023
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Moving on Positively: A Guide for Youth, Caregivers and Providers
Guidebook for multiple audiences that outlines steps for transitioning youth from pediatric care to adult services.
Resource updated 04/06/2022
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Women of Color: Enhancing Access
Implementation guide for HIV providers on addressing the unique needs of women of color living with HIV.
Resource updated 05/15/2024
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YGetIt? Program
The YGetIt? Program engaged youth and young adults with HIV in care through three components: a health management mobile application (GET!), Peer Engagement Educator Professionals (PEEPs), and a graphic serial (Tested). Tested received over 200,000 views, and viral suppression rates among YGetIt? participants increased from 79% to 86% over the course of the program.Resource from the RWHAP Best Practices Compilation updated on 03/18/2024
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Rise
Rise was implemented to address ART adherence issues among Black people with HIV. Through Rise, peer counselors used motivational interviewing techniques, leveraged Medication Event Monitoring System data to monitor and promote adherence, and connected participants to support services to address unmet needs. A randomized controlled trial showed that Rise participants were more likely to be adherent to ART than non-participants.Resource from the RWHAP Best Practices Compilation updated on 06/11/2024
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General Ryan White Services Report (RSR) Orientation
Introduction and discussion forum for RWHAP staff new to the Ryan White Services Report (RSR).Event updated 06/13/2024
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Recipients (Non-provider) and the RSR
The DISQ Team will provide an overview of common recipient data management approaches and the RSR workflow, including how to promote high-quality data submissions from subrecipients. The session will include and open discussion and Q&A.Event updated 06/13/2024
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TRAX for the RSR
Learn more about TRAX and troubleshoot common TRAX issues in this informal discussion group.Event updated 06/13/2024
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Data Integration, Systems and Quality (DISQ) Team
Help with the RSR, ADR, CDR, EHE, HIVQM, and AETC data systems. Project period: 2020-2025.
RWHAP Technical Assistance Provider updated on 04/15/2024
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CAREWare
CAREWare help desk addresses issues pertaining to the CAREWare data collection system. - 877-294-3571 - [email protected]
RWHAP Technical Assistance Provider updated on 04/15/2024
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A Guide to Consumer Involvement: Improving the Quality of Ambulatory HIV Programs
Guide on ways an organization can involve consumers in quality improvment.
Resource updated 09/19/2023
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Community Mobilization for a Women’s Self-Care Health Promotion Campaign
Pilot-test of an online meeting Using Web 2.0 tools vs. a traditional in-person meeting venue with women infected or affected by HIV infection. This report from the second phase of this study describes the methods and outcomes of this comparison of two different approaches to community mobilization. Each approach was effective in this study.
Resource updated 03/15/2018
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Self-Assessment Module (SAM) Series
Workbooks for RWHAP planning bodies and other entities to self-assess their effectiveness.
Resource updated 09/19/2023
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Module 4: Innovative Models of Care: Health System Navigation/ Retention in Care Coordination
Overview of the health system navigation/ retention in care model of care. Part of the tools in Innovative Approaches to Engaging Hard-to-Reach Populations Living with HIV/AIDS into Care.
Curriculum updated on 01/01/2013