What you need to collect for the RSR
- Client-level data elements
- Grantee and Provider Reports
- Getting data from other systems
What you need to collect for the RSR
Managing and submitting the RSR:
High quality Ryan White Services Report (RSR) data are essential for demonstrating the impact of your important work.
These resources will help Ryan White grantees and providers define, measure, and improve their data quality.
All about the software systems that are RSR-ready
Agencies that collect client data, either on paper or electronically, are responsible for protecting the data. Data security is defined by Public Health Data Standards as “physical, technological, or administrative safeguards or tools used to protect identifiable health information from unwarranted access or disclosure."
Data security entails attention to security and also requires attention to protecting the privacy of client information in accordance with HIPAA and other requirements. Ryan White data collection systems use the eUCI (Unique Client Identifier), an algorithm that meets the highest privacy and security standards.
Agencies funded by the Ryan White HIV/AIDS Program are responsible for managing their grant funds wisely. Legislative provisions and Federal grants management requirements dictate how funds can be used and what is required in monitoring activities and resources.
Ryan White HIV/AIDS Program recipients and subrecipients are responsible for ensuring that funds are spent wisely. Fiscal management systems help agencies comply with legislative, policy, and grants management requirements and manage program income, expenses, and third party contracting and reimbursement.
Ryan White HIV/AIDS Program needs assessment is a process of collecting information about the needs of people with HIV (PWH)—both those receiving care and those not in care. Steps involve gathering data—from multiple sources—on the number of HIV and AIDS cases, the needs of PWH, and current resources (Ryan White HIV/AIDS Program and other) available to meet those needs. This information is then analyzed to identify what services are needed and by which groups of PWH.
Quality management under the Ryan White HIV/AIDS Program (RWHAP) involves activities to improve client health outcomes. These efforts focus on establishing standards and systems to measure and improve performance.
The Ryan White HIV/AIDS Program (RWHAP) fills gaps in care for individuals living with HIV disease. Over half of the 1+ million people living with HIV/AIDS in the U.S. get some type of care from the RWHAP. The majority of RWHAP clients are low income individuals from racial/ethnic minority populations. Technical assistance and training resources assist RWHAP agencies in delivering care to the overall RWHAP population as well as to specific populations. Examples include care protocols, cultural competency resources, and patient education materials.
One-fourth of Ryan White HIV/AIDS Program (RWHAP) clients are female. Minority women, particularly African Americans, are the most heavily impacted. Many women living with HIV disease face socioeconomic and other barriers, like intimate partner violence and responsibility for child and family care. Women who receive care from the RWHAP are far more likely to be retained in care and have viral suppression than those not receiving RWHAP services.
People who feel understood, respected, and valued are more likely to stay in care. The resources in this collection address ways that clinics and other service providers can identify and address bias to improve communication with diverse clients.
MSM comprise the majority of HIV/AIDS cases in the U.S., representing over half of those infected with HIV/AIDS. In 2022, among MSM getting medical care from the RWHAP, 90.2% achieved viral suppression. These rates varied across MSM populations, particularly MSM with unstable housing and younger MSM.
In the U.S., several million individuals are incarcerated at any given time, both in prisons for longer terms and in jails for shorter stays. Many individuals who pass through the corrections system engage in high-risk behaviors, prior to incarceration and while in the system. Mental health and substance abuse challenges are particularly high among this population.
Evaluation is the systematic collection of information about the characteristics, activities, and outcomes of services or programs to assess the extent to which objectives have been achieved, identify needed improvements, and/or make decisions about future programming.
Adherence to prescribed treatment plans is critical for their success, and adherence support is a key component of medical case management services.
Part C of HRSA's Ryan White HIV/AIDS Program (RWHAP) provides comprehensive primary health care in an outpatient setting for people living with HIV disease. The main Part C program, Early Intervention Services (EIS), funds hundreds of community agencies to engage underserved individuals in HIV/AIDS care. A smaller Part C program, called Capacity Development, funds agencies to build or improve their ability to deliver HIV/AIDS care.
Questions about Part C Capacity Development? Email [email protected].
Part D of HRSA's Ryan White HIV/AIDS Program (RWHAP) provides outpatient family-centered care for women, infants, children, and youth with HIV/AIDS. Medical care and support services are the same as provided by other Ryan White agencies, with the difference being attention to specific needs of women and their families.
Questions about Part D? Email [email protected].