Social Media

Social media and mobile technology-based interventions represent potential means to facilitate HIV care continuum engagement, particularly among populations (e.g., youth) that make extensive use of mobile technology. Notable uses include broad social media education/awareness programs, messaging services to engage directly with clients, and mobile applications for providers and patients to communicate, track, and exchange information.

Resources 17

Best Practices

  • Center for Innovation and Engagement
    Collection of implementation guides on evidence-informed best practices in HIV care delivery.
  • IHIP
    Project to enhance the provision of HIV care for Latina transgender women in Los Angeles County.
  • IHIP
    Ninetyday theory-based, transgender-specific, automated text-messaging intervention designed to improve engagement, retention, and health outcomes along the HIV care continuum.
  • IHIP
    Multi-level messaging intervention focused on linking Latinos with HIV to high quality HIV primary care in Dallas County, Texas. Individual-, group- and community-level strategies.
  • University of Texas Health, San Antonio, SPNS HCV Cure among People of Color with HIV
    Slides with summaries of the SPNS initiative, Curing Hepatitis C among People of Color Living with HIV including: evaluation questions; dissemination activities; and site reports.
  • SPNS Social Media Initiative

    Social media tools developed by demonstration sites (e.g., text messaging, apps).

  • Best Practices Compilation
    University Health uses peers and patient navigators to provide support, reduce barriers, and improve linkage and retention to care for women and youth with HIV. Two peers with lived experience were hired as Outreach Specialists to spearhead the program, encourage medication adherence and use of services, and provide mentoring. The intervention was successful in moderately improving the numbers of clients linked to care, retained in care, and virally suppressed.
  • Center for Innovation and Engagement
    TAVIE Red is a mobile application that utilizes gamification to increase health and psychological self-management and assists case managers with connecting with clients.
  • Best Practices Compilation
    In weCare, a cyber health educator sent personalized messages through text, web-based apps, and Facebook to enrolled youth who identified as gay, bisexual, or other men who have sex with men (MSM), or transgender women, and who either had a new diagnosis of HIV or were not in care at the time of enrollment. Messages were personalized to each participant’s needs and were designed to support them as they navigated complicated health care systems as well as other challenges that affect care engagement (e.g., transportation, disclosure). The cyber health educator also moderated and posted information about health and well-being on an optional secret Facebook page that some participants chose to join. Participants were less likely to miss medical appointments and more likely to be virally suppressed after 12 months of the intervention.
  • Best Practices Compilation
    Wellness Web 2.0 is a text message-based intervention that offers health education tools, appointment reminders, and navigation services to increase linkage to and retention in care for youth and young adults with HIV. Clients across 27 counties in South Texas enrolled in the Wellness Web 2.0 program had improvements in linkage to HIV medical care and viral suppression.

Resources

  • In It Together

    Health literacy training initiative to help health professionals incorporate health literacy approaches into their services.

  • Technical Assistance Provider Innovation Network (TAP-in)

    This toolkit provides guidance and best practices on the evaluation of social media/media (SMM) campaigns. The information is meant to serve as a starting point for EHE jurisdictions to help you decide how best to measure the success of your SMM campaigns.

  • TargetHIV
    For inspiration, adaptation, or replication, explore some recent outreach efforts from government and community agencies. 
  • HRSA HIV/AIDS Bureau (HAB)

    Library of text messages for patients, developed by the UCARE4Life research study.

Training Modules

Webinars

Conference Presentations

Syracuse University
Presenters:
Cyndee Burton, Joshua Introne, Clarke Anderson, Steven Karpeles
2022 National Ryan White Conference on HIV Care & Treatment
AIDS Foundation of Chicago
Presenters:
Emily Moreno, Angela Jordan
2022 National Ryan White Conference on HIV Care & Treatment
NYS DOH AIDS Institute
Presenters:
Mark Thompson, Beatrice Aladin
2022 National Ryan White Conference on HIV Care & Treatment
JPS Health Network
Presenters:
Afiba Agovi, Meng Pan, Danielle Cameron, Hannan Saad, Jeff Claassen, Eve Asuelime, Rohit Ojha
2022 National Ryan White Conference on HIV Care & Treatment
BETAH Associates, Inc.
Presenters:
Tamara Henry, Tasneem Islam
2022 National Ryan White Conference on HIV Care & Treatment

Technical Assistance

  • TAP-in supports the 47 EHE jurisdictions funded by HRSA to strengthen their EHE work plans, promote cross-jurisdictional learning, and ensure jurisdictions have access to the resources they need. Project period: 2020-2025.

  • Initiative documenting best practice strategies and interventions that have been shown to improve HIV outcomes in a "real world" setting and can be replicated by other programs. Project period: 2021-2024.