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- Hepatitis
Liver disease that is tied to Hepatitis C (HCV) infection is a leading cause of death among HIV-infected individuals. Hepatitis B is also a major challenge for many people with HIV. Ryan White-funded clinics are taking on a greater role in not only managing HCV disease but also providing HCV treatments.
- Case Management
Case management is a service category with varied models and definitions that is designed to link clients to medical and support services. Ryan White defines medical case management (including treatment adherence) as a range of client-centered services that link clients with health care, psychosocial, and other services provided by trained professionals, including both medically credentialed and other health care staff. Medical case management is considered to be a core medical service for purposes of Ryan White funding requirements to allocate a set percentage of funds to core medical services.
- CAREWare
This free, HRSA-supported software can be used to manage HIV/AIDS care service data and submit the RSR. In addition to tools on this page, access the CAREWare webpage on the HRSA HAB website for software downloads, version updates, quick start manuals, medication imports.
Need help ugrading to CAREWare 6? Submit a TA request.
- Retaining in Care
Engagement in HIV/AIDS care falls along a continuum, from not being in care at all to being fully engaged, with interim points that reflect inconsistent and non-engagement in care. Varied interventions can enhance care engagement, including peer support, motivational interviewing, and case management. HRSA HAB through the SPNS program and other initiatives identify and evaluate innovative retention approaches, and produce replication materials for those showing the most promise. Many of these interventions focus on populations at most need, including youth, transgender women, and women and MSM of color.
- People with HIV & Community Involvement
A core value of the Ryan White HIV/AIDS Program is engagement of people with HIV in their care and in their community's work to address the epidemic. This might include:
- Serving as members and leaders of planning bodies. See also our Planning resources.
- Participating in community advisory boards to provide feedback to clinics on services and their design.
- Serving as peer workers to other persons with HIV to engage and retain them in care. See our Peer Programs resources.
- Serving as volunteers and paid staff members in HIV agencies.
Need help finding HIV services? Go to our People with HIV and Community page
- Planning
Planning under the Ryan White HIV/AIDS Program (RWHAP) is a multi-step process of information gathering to determine needs and subsequent decision making to devote resources to the highest needs.
- Metropolitan-wide planning (RWHAP Part A) and state level planning (RWHAP Part B) is comprehensive by design as planning takes into consideration a wide geographic area, various populations and varied services. Part A and B planning entails a sequence of tasks to first assess needs, then examine assessment data and make decisions including what services to fund, and coordination of planning with other RWAHAP Parts and other payers.
- Planning undertaken by clinics and other service agencies under other RWHAP Parts involves examination of epidemiologic and service delivery data to identify needs in the service delivery area. This type of planning is then used to guide decisions about how to deliver services.
- RWHAP Planning Council and Planning Body directory
- Peer Programs
Peers in HIV care are specially-trained individuals who serve on the health care team to provide patients with information, support, and assistance in navigating services. HIV peers are often living with HIV, but not always. Their qualifications and roles rest on their connection with the community they serve. Peer programs serve to recruit, train, and support peers so that they can carry out their duties.
- Collecting data
What you need to collect for the RSR
- Client-level data elements
- Grantee and Provider Reports
- Getting data from other systems
- Reporting Data
Managing and submitting the RSR:
- Manuals
- Reporting by Part
- Managing the RSR deliverable
- Funded Scope requirement
- Data Quality
High quality Ryan White Services Report (RSR) data are essential for demonstrating the impact of your important work.
These resources will help Ryan White grantees and providers define, measure, and improve their data quality.
- Software Systems
All about the software systems that are RSR-ready
- Tips and tools for evaluating software for the RSR
- CAREWare and other software systems
- See also Resources for EHR Users to sign up for collaborative, provider-led webinars with EHR user groups
- Data Security and eUCI
Agencies that collect client data, either on paper or electronically, are responsible for protecting the data. Data security is defined by Public Health Data Standards as “physical, technological, or administrative safeguards or tools used to protect identifiable health information from unwarranted access or disclosure."
Data security entails attention to security and also requires attention to protecting the privacy of client information in accordance with HIPAA and other requirements. Ryan White data collection systems use the eUCI (Unique Client Identifier), an algorithm that meets the highest privacy and security standards.
- Program & Grant Management
Agencies funded by the Ryan White HIV/AIDS Program are responsible for managing their grant funds wisely. Legislative provisions and Federal grants management requirements dictate how funds can be used and what is required in monitoring activities and resources.
- Fiscal Management
Ryan White HIV/AIDS Program recipients and subrecipients are responsible for ensuring that funds are spent wisely. Fiscal management systems help agencies comply with legislative, policy, and grants management requirements and manage program income, expenses, and third party contracting and reimbursement.
- Needs Assessment
Ryan White HIV/AIDS Program needs assessment is a process of collecting information about the needs of people with HIV (PWH)—both those receiving care and those not in care. Steps involve gathering data—from multiple sources—on the number of HIV and AIDS cases, the needs of PWH, and current resources (Ryan White HIV/AIDS Program and other) available to meet those needs. This information is then analyzed to identify what services are needed and by which groups of PWH.
- Clinical Quality Management
Quality management under the Ryan White HIV/AIDS Program (RWHAP) involves activities to improve client health outcomes. These efforts focus on establishing standards and systems to measure and improve performance.
- Access a range of technical assistance and training tools on quality improvement, developed by HRSA's Center for Quality Improvement and Innovation (CQII). (Tools are also listed below.)
- Learn about RWHAP quality management standards and policies from the HRSA HIV/AIDS Bureau's Quality of Care webpage and join the RWHAPCQM ListServ to share ideas and ask questions related to RWHAP Clinical Quality Management.
- Key Populations
The Ryan White HIV/AIDS Program (RWHAP) fills gaps in care for individuals living with HIV disease. Over half of the 1+ million people living with HIV/AIDS in the U.S. get some type of care from the RWHAP. The majority of RWHAP clients are low income individuals from racial/ethnic minority populations. Technical assistance and training resources assist RWHAP agencies in delivering care to the overall RWHAP population as well as to specific populations. Examples include care protocols, cultural competency resources, and patient education materials.
- Women
One-fourth of Ryan White HIV/AIDS Program (RWHAP) clients are female. Minority women, particularly African Americans, are the most heavily impacted. Many women living with HIV disease face socioeconomic and other barriers, like intimate partner violence and responsibility for child and family care. Women who receive care from the RWHAP are far more likely to be retained in care and have viral suppression than those not receiving RWHAP services.
- Cultural Competency
People who feel understood, respected, and valued are more likely to stay in care. The resources in this collection address ways that clinics and other service providers can identify and address bias to improve communication with diverse clients.