Use of participatory arts to generate dialogue and engage individuals in receiving health care, provide a safe space to speak more freely outside the confines of the medical system, and inspire involvement in community activities.
A core value of the Ryan White HIV/AIDS Program is engagement of people with HIV in their care and in their community's work to address the epidemic. This might include:
- Serving as members and leaders of planning bodies. See also our Planning resources.
- Participating in community advisory boards to provide feedback to clinics on services and their design.
- Serving as peer workers to other persons with HIV to engage and retain them in care. See our Peer Programs resources.
- Serving as volunteers and paid staff members in HIV agencies.
Need help finding HIV services? Go to our People with HIV and Community page
Resources 38
Best Practices and Emerging Models
- SPNS Improving Care and Treatment Coordination Black Women with HIV
- SPNS Improving Care and Treatment Coordination Black Women with HIVHow consumer and community advisory boards acan be leveraged to inform the development and implementation of evidence based interventions designed to improve care for diverse Black women with HIV.
- Center for Innovation and EngagementCollection of implementation guides on evidence-informed best practices in HIV care delivery.
- Boston University School of Public Health
Resources to help clinics integrate community health workers (CHW) into an HIV multidisciplinary team model.
Resources
- HRSA HIV/AIDS Bureau (HAB), NASTAD
CPAPA is no longer being updated by NASTAD and has been replaced by Pharmaceutical Company Patient Assistance Programs and Cost-Sharing Assistance Programs.
- U.S. Department of Health and Human Services
U.S. HIV-related treatment guidelines, drug database, and glossary.
- In It Together
Health literacy training initiative to help health professionals incorporate health literacy approaches into their services.
- Planning CHATT
Review of the roles and functioning of Ryan White Part A planning councils.
- HRSA HIV/AIDS Bureau (HAB)
Materials to help programs develop strategies to employ Ryan White consumers/people with HIV.
- HRSA HIV/AIDS Bureau (HAB)
Methods that involve persons with HIV to help link others into care.
- IHIPMobile app for youth offering information, social networking, and self-management tools to support holistic HIV care.
- SPNS Improving Care and Treatment Coordination Black Women with HIVExplanation of how to create a photovoice, a type of participatory action research that engages people in the process of naming, capturing, and strengthening their community through photography.
- NMAC
The purpose of the ESCALATE training program is to facilitate transformative and relational change in Ryan White HIV/AIDS Programs (RWHAP) and the communities they serve.
- HRSA HIV/AIDS Bureau (HAB)
Federal agency that administers the Ryan White HIV/AIDS Program (RWHAP), which helps low-income people with HIV receive care.
- Planning CHATTThis resource for new planning council members helps orient them to their roles and duties as HIV community planners.
- U.S. Department of Health and Human Services
Portal for HIV/AIDS information from the U.S. federal government, including the Ending the HIV Epidemic initiative.
- Planning CHATT
Guide for planning councils/planning bodies to conduct orientation and ongoing training to prepare members to participate fully in RWHAP Part A planning and decision making.
- U.S. Department of Health and Human Services
Federal resources on discrimination and health care privacy protections.
- HRSA HIV/AIDS Bureau (HAB)
Steps for conducting a town hall meeting as part of a community needs assessment/planning process.
- New York State Department of Health AIDS Institute
Guide on ways an organization can involve consumers in quality improvment.
- AIDS Alliance for Children Youth and Families
Workbook on setting up and operating a consumer advisory board (CAB).
- HRSA HIV/AIDS Bureau (HAB)
Recruitment and retention strategies that planning groups can use to support membership.
Training Modules
- HRSA HIV/AIDS Bureau (HAB)
Learning tools on how to engage hard-to-reach people with HIV into care, including a training manual (for adapting SPNS models); a curriculum (for training staff); and webinars on key topics.
Webinars and Training
- HRSA HIV/AIDS Bureau (HAB)
An orientation to Ryan White Planning Councils for prospective new members. Una introducción a los consejos de planificación para miembros recientes.
- IHIPWebinar series featuring HIV care innovations developed under the HRSA HIV/AIDS Bureau’s Special Projects of National Significance (SPNS) program. Sessions share insights on how to replicate SPNS interventions.
- Planning CHATTDiscussion of key stakeholder engagement in your Planning Council/Planning Body (PC/PB).
- NMACReview of clinical quality management and how it can improve the health of those in HIV care.
- HRSA HIV/AIDS Bureau (HAB)
Webinars and other special events by HRSA's HIV/AIDS Bureau.
- NMACThis webinar presented by the ELEVATE and JSI will focus on enhancing the understanding of how to interpret data commonly used in HIV care and prevention planning endeavors.
- NMACDefinition of Social Determinants of Health and the Structural Determinants of Health, how recognize the connection between social and structural determinants of health on HIV prevention, treatment, and care, and how to identify opportunities to impact structural and social factors within the HIV service delivery system.
- NMACThis webinar presented by ELEVATE NMAC Team and JSI will focus on promoting the application of Harm Reduction Principles among PWH employed in HIV Service Delivery System.
- NMACReview of key HIV related terminology and the basic biology of HIV and the stages of HIV infection.
- HRSA HIV/AIDS Bureau (HAB) and NMACThe purpose of this webinar is to raise awareness of the availability and purpose of community planning groups.
- Technical Assistance Provider Innovation Network (TAP-in)Recordings of the TAP-in webinars on topics critical to the Ending the HIV Epidemic Initiative.
- Planning CHATTWebinar on the importance of building consumer leadership skills and will provide strategies and best practices to help ensure and amplify consumer input into PC/PB activities.
- Planning CHATT
Strategies to improve recruitment and retention of new PC/PB members.
- IHAP TA CenterStrategies for ongoing consumer and stakeholder engagement in the integrated prevention and care planning, implementation, and monitoring processes.
- Boston Public Health Commission
Video to recruit new members for the Ryan White Part A Planning Council, featuring consumer voices.
Conference Presentations
Tarrant County HIV Administrative Agency
Presenters:
Kaitlin Lopez, Brandon Bright
2022 National Ryan White Conference on HIV Care & Treatment
BETAH Associates, Inc.
Presenters:
Tamara Henry, Tasneem Islam
2022 National Ryan White Conference on HIV Care & Treatment
HRSA
Presenters:
Tamika Martin, Erin Northrup
2022 National Ryan White Conference on HIV Care & Treatment
HRSA
Presenters:
Antigone Dempsey, Venita Ray, Steven Vargas, Clover Barnes, Ronald Johnson
2022 National Ryan White Conference on HIV Care & Treatment
HRSA
Presenters:
Akil Pierre, Mahyar Mofidi
2022 National Ryan White Conference on HIV Care & Treatment